I woke up this morning and my pain was pretty intense. It wasn’t like when it was at it’s worst, which was almost exactly 1 year ago, but it was still pretty bad…
I don’t talk about my health problems very often for a few reasons. One is, nobody likes a complainer. Two is, I’ve sort of learned to just deal with it and have accepted it as part of me and part of how I will live now. Third is, I look okay to the outside world, so there’s nothing visible that cues people to ask about it.
It seems like it is getting to be closer to the time that I have to explain what is happening, though, because some people just don’t get it. Like if I don’t help lift some heavy items at work I get snide comments like “Don’t exert yourself…”, and things of that nature. So I am thinking I will also start sharing this at work a little more.
(Just an FYI- I have left a lot of my doctor visits and treatments tried out for the fact that they didn’t work and it is fairly tedious/boring… I have visited numerous doctors and tried many things, they even tried ultrasound on me which made things WAY worse… And don’t suggest any of that new age BS, don’t you dare!) :)
In December of 2009 I started getting pain. It felt like a heart attack, and at first that’s what they were checking me out for. Turns out my heart is fine, and I don’t have any other health problems. They told me I probably just had some kind of virus and it would go away. It never did go away.
In March of 2010, it got significantly worse. I spent about a week in bed, and felt absolutely useless. The pain was so bad, I felt for sure that I was going to die. I was very relieved when the pain subsided enough to be up and about. But the pain never went away. (This was the only week of work I’ve missed for illness since 2009. I made a conscious decision to live with this instead of letting it get me down.)
The doctor’s diagnosed me with costochondritis, and told me it should go away in 2-3 weeks. It never did. So they finally sent me to a rheumatologist, and they tested my blood. I have all of these ‘type-markers’ for some pretty nasty things, like chronic fatigue, fibromyalgia, lupus, and even rheumatoid arthritis. The thing is, at this point it basically seems like I may or may not get these things, and no one is really sure how I will progress. I have been advised against giving blood (which I’d already read about before the doctor told me) since there has been some speculation that certain auto-immune disorders are actually transmitted through blood. I would never be able to forgive myself if it was my fault that someone else had this pain.
This brings me to the one glimmer I’ve had- I received a letter from the Mayo Clinic- they are apparently looking to study these type markers and how they progress. I am hoping that, at the very least, that I can help other people so that they might not have to go through this.
I’ve found a website that pretty much outlines what I am going through. It looks now, to me, that my costochondritis is chronic. In the last 6-10 months, I have also added joint and muscle pain EVERYWHERE in my body to my list of symptoms. I feel like each little joint is assaulting me and trying to make me feel miserable. It is very tiring to have chronic pain. Your body is always holding out against it, and it is a constant battle. Another symptom, that sucks, is I sweat so much because I am in so much pain and my body is working so hard to push me through it. It is embarrassing when people comment on it, especially because I can’t help it.
Even though I still appear ‘happy’ all of the time, it has changed my life significantly. Where before my husband and I could go out and look for geocaches all day, I can maybe do 1 now. I get tired so quickly and have to go to bed extremely early because of my fatigue from the day. I can’t lift things the way I used to be able to, even lifting up my laptop is something that can give me a significant amount of pain. Putting on shoes and tying them is hard and always wears me out. Taking a shower is exhausting, having to have my arms up to wash my hair is very difficult. Driving sucks because you have to have your hands/arms up on the steering wheel. (This is why I bought my Mini Cooper… If driving hurts this bad, you may as well be doing it in an awesome car…) :)
Again- not many people know this about me, because I hate to complain to other people, and I know they don’t like it. I don’t want to be ‘that person’ who is always bitching about some health problem, or whatever. But at the same time, I am going through something very real, and doing it with a smile on my face every day. (I have to say, it did help me greatly once I decided to just live with this and that it was going to be a part of me now, instead of constantly fighting it or trying to understand it.) I think it would do people some good to remember that you really have no idea what other people are facing, even if they appear to be chipper and full of energy! :)